Showing posts with label Alzheimer's. Show all posts
Showing posts with label Alzheimer's. Show all posts

Sunday, 8 August 2021

“How Do We Remember? To Re-Feel Our Lives Again”

The Olympics end today. I find that they always bring up memories of years gone by. They connect folk with the past and times in history, both personal and universal. The Olympics are always caught up in their time and space. In years to come no doubt these Olympics will be known as the “Covid Games”. They have already been postponed for one year. These are the 2020 Olympics, but are taking place in 2021. They have taken place without crowds of supporters cheering on the competitors. They have also been the games that have highlighted various mental health issues that top class athletes, as well as ordinary folk, suffer from. Society has changed and is changing and this is reflected in all aspects of life.

I have been watching the Olympics, but not with the same interest and attention that I have in the past. I am not sure why. Someone suggested to me the other day that is probably because of the time difference. I am not convinced of this. As a child I loved the Olympics. My first sporting hero was Brendon Foster and this dates back to the 1976 Olympics at Montreal. I was only four years old at the time. Now when I say he was my sporting hero, I suspect he was more my mum’s. She loves the Olympics and I suspect I enjoyed watching with her all those years ago. The images I remember from 1976 are not of the actual events but images repeated over the years. My mum likes to tell the story of waking me late in the night so I could watch Brendan Foster’s race, he came third and won bronze in the end. What is strange is that I do have this felt memory of being woken. It is not so much a visual memory though, more an emotional one. This though does not surprise me as memory for me is much more a felt, an emotional experience, rather than a visual one. In many ways it’s the responses of competitors after the events that stay with me, not just the competition, I am touched by the joy and the emotion.  I am touched by the years of dedication that these people and those who have supported them have put into their lives. Not just the winners and medallists, but also those competing. It is inspiring and these feelings stay with me, stored in my heart and soul. No doubt others remember differently.

If I have learnt anything in life it is that people can experience events, remember events, that they were both present at very differently. There are many reasons for this, but one may well be how their senses take in the experience, another how they actually remember. Some people are much more visually minded than others, more spacially aware. I have noticed over the years how different my brother and myself are. We recall things very differently and I suspect that this is because we process and thus remember very differently. We human beings are very diverse creatures indeed. While my brother and me look alike, we are not very alike.

A Lot of my memories were lost for many years, but have over time been re-felt and re-experienced. This is never an easy experience, but it is a rich one in the end. When I say it isn’t always easy, I am understating things, in truth it can be excruciatingly painful. I have recently re-experienced some memories while visiting an old friend who was staying in hospital in the North West. Thankfully he has been able to return home and I hope that his mental condition will continue to heal. During our conversations he talked an awful lot of our days, when we were students. Events and people and experiences that just weren’t there for me, they were gone, seemingly lost, from my mind. Some amusing and wonderful and others less so. There was an awful lot camaraderie, friendships and the odd romance, that never ended well. The memories though were not particularly visual though, they were felt, they were emotional. I re-felt these memories, I re-sensed them, they were resentments. They keep on coming as the days pass.

As I have said, many times before, I wish we had a word for re-sensing things that didn’t only have negative connotations. Resentment means to re-feel, to re-sense something, sadly we do not have a word for doing so in a positive or even neutral sense. My memories are mixed experience, aren’t all of memories a mixture of blessings and curses, just as life is. To quote good old Moses, “I lay before you life, blessings and curses, therefore choose life”

I wonder how your memories manifest in your life. Maybe you could reflect on past Olympics and where you were in your life and the folk you shared those memories with. How do you remember? What senses come alive? Perhaps talk with those who shared those memories with you, how do they remember? I Bet that they don’t in exactly the same way.

Memory is a mysterious thing. The way I remember my own life and people I share my life with has changed many times. The changes seem to coincide with the way I have experienced and understood my own humanity. The truth is that my life is made up of those lives that went before me, my life is built on their lives and those that follow me, their life will be built on mine and my contemporaries. The ancestors who walked before me and those that follow me are actually a part of me. I find that incredibly humbling.

It fascinates me how these memories take shape and form and often reshape as time goes by; it amazes me how these memories seemingly re-incarnate as the days pass. In many ways it is memory that brings the moments I am experiencing to life, how these ghosts of the past in habit our lives. They follow us like headlights on our tales.

One thing I have never had a great memory for is names. I was talking with someone the other day who told me how much he hates it that some people forget the names of others, he said he thought it was disrespectful. I told him that am one of those people. I can remember details of a person’s life, if they have told me it, faces stay with me, even though I claim I don’t have a visual memory, but I suspect that is more spacial than facial the deficit I mean. That said for some reason names can easily get lost somewhere. By the way it is not only the names of people, but places and things too. The details are there, but not the name. I am told that this is only going to get worse, I have already seen the signs of what is yet to come. Billy Collins captured this perfectly in his poem “Forgetfulness” Angela Fowler recently shared this poem at our poetry night. She loves Billy Collins, as do many of us. He has the capacity to touch places deep within but in a simple easily relatable way. Interestingly when I remined of this on Thursday she had forgotten about it, which we all laughed about together, a beautiful moment of human connection.

Here is the poem

The name of the author is the first to go
Followed obediently by the title, the plot,
The heartbreaking conclusion, the entire novel
Which suddenly becomes one you have never read,
Never even heard of,
As if, one by one, the memories you used to harbor
Decided to retire to the southern hemisphere of the brain,
To a little fishing village where there are no phones.
Long ago you kissed the names of the nine Muses goodbye
And watched the quadratic equation pack its bag,
And even now as you memorize the order of the planets,
Something else is slipping away, a state flower perhaps,
The address of an uncle, the capital of Paraguay.
Whatever it is you are struggling to remember
It is not poised on the tip of your tongue,
Not even lurking in some obscure corner of your spleen.
It has floated away down a dark mythological river
Whose name begins with an L as far as you can recall,
Well on your own way to oblivion where you will join those
Who have even forgotten how to swim and how to ride a bicycle.
No wonder you rise in the middle of the night
To look up the date of a famous battle in a book on war.
No wonder the moon in the window seems to have drifted
Out of a love poem that you used to know by heart.

…Billy Collins captures something beautiful, if a little painful here, as he usually does.

Memory is a mystery, we all forget things. I keep on forgetting things at the moment, but I know that this grief and how it manifests in my life, how love and loss plays out. Thankfully I am keeping a sense of humour about all this. We have to maintain our sense of humour about such things. That said there are types of memory loss that less funny, tragic really. There is of course Dementia, in its many forms, the cruellest being Alzheimer’s. A disease which attacks the cortex of the brain forming bundles of tangled plaque that inhibit conversation between the neurons; as it takes away a persons identity and history as aspects of their humanity drift away. The longer we live the more likely we are to become one of its victims.


While the Alzheimer’s sufferer forgets, those who loved them never let them go. Those who shared memories with them hold their love, those feelings are felt in that deeper place that cannot be destroyed by time. Love is eternal, it is immortal. Perhaps some of us feel these experiences more deeply, depending on how we experience life. Sometimes they are so intense that we lock these memories away. Ghosts though have a habit of haunting you again when you least expect them to.

This brings to my mind the following verses from Isaiah (49 vv 15-16):

15 Can a woman forget her nursing child,
or show no compassion for the child of her womb?
Even these may forget,
yet I will not forget you.
16 See, I have inscribed you on the palms of my hands;
your walls are continually before me.

These words came to me the other day as I was looking at the callouses on my hands caused by training at the gym. I then spent a little time looking at the palms of my hand. I looked at what are called the heart and lifelines and remembered the love I have known and the love I have shared, with those people who have made up my life. Such feelings are surely Divine. There are times when these feelings are too much.

This is beautifully illustrated by Thich Nhat Hahn, who wrote in “Present moment, wonderful moment”

“If you look deeply into the palm of your hand, you will see your parents and all generations of your ancestors. All of them are alive in this moment. Each is present in your body. You are the continuation of each of these people.”


Isn’t he right. All that has been before is a part of who we are.

Life awes me every single day, it humbles me also. The more I learn the less things make sense. Every day I have a growing sense of how truly ignorant I am. Nothing makes absolute sense to me. I have no idea why I feel what I feel or why my mind remembers and forgets things and then suddenly the memory is more alive than it has ever been. Clever people try to explain these things to me, but they seem to get it even less I. The sum of the parts they describe do not even begin to scratch the surface of the whole.

I am grateful to be a part of this incredible mystery that is life itself; that I get to share with the people I do; that I get to experience the sensations of these memories coming to life in my body and spirit, enhancing my experience of life today.

I am grateful to have experienced this the most amazing trip that anyone could wish to be on. Thank you for being a part of it. What a ride, what a ride…

Please click below to watch a video devotion

based on the material in this "blogspot"




 

Sunday, 19 May 2019

Memory is a Mystery to Me

As the silence came to an end during the meditation, I was sharing with my Tuesday morning friends, I felt overcome by a beautiful sense of peace within myself and for all of life. I felt awake to the moment I was in and connected to all of eternity. As the feeling flowed over me a memory awakened within my being. I was taken back to a childhood time. What today would be called year four, but in my day was the first year of junior school. I re-felt, I re-sensed a memory of being sat on the floor with my class mates listening to the teacher reading the end of day story. It was a lovely feeling as I re-felt the experience. There was not really a picture in my mind, other than a very vague one of the room, which even now I cannot see in my minds eye. I can’t even picture the teacher or even my class mates. What I remember is that lovely sense of well being. As I sat there, awakening from the silence, that Tuesday morning, I re-awakened that feeling, the experience re-incarnated in me.

The fact I can’t really picture the memory is not very surprising to me as I am not a visually minded person. I have friends who can visualize all kinds of memory, but I am not one of them. My memories tend to be more sensed than seen. Memory and memories are an utter mystery to me. Why it came when it did and in the form that it did, I have no clue of. I immediately shared the experience with the friends I was with and on Facebook as soon as I could. I felt the need to share it widely and thus make it more real.

Social media, particularly Facebook gets a bad press. It has been rightly criticised in some quarters. Young people consider it passé. The fact I favour it as my preferred social media option ages me somewhat. One of my favourite things about Facebook is that each day it reminds you of previous posts on that day over the years.

The other day I came across the following quotation, I had originally posted two years ago:

“A spontaneous flash of understanding came to me an hour or two after the birth of our first child: "He will never remember today. His birth is chiefly experienced by me, his other relatives, the nurses, and the young mother in the next bed in this war-time hospital. So it may be in death? Only others aware of our passing?”

Hilda Martin Hall

Sadly, I have no memory of where this came from. I find it beautiful. It got me thinking and re-feeling. Two of the most important moments of our lives, our birth and our death, perhaps the most memorable to our nearest and dearest, we have no memory and no real awareness of. If we do have awareness we have no way of communicating the experience through our physical senses. These moments though, as they are experienced by our nearest and dearest, can be some of the most memorable of their lives. They are a part of the natural experience of living and dying and yet the they are the most awe filled, they are awful in the old meaning of the word.

I have never witnessed the birth of a child, I am not a parent. That said I can still re-feel the incredible experience of first seeing my youngest sister Natalie as well as nieces and nephews, truly awe filled moments. I remember powerfully how it felt visiting my grandad those last few times before he died. As well as seeing the lifeless bodies of my father and little Ethan, that incredible outpouring and heartbreaking love as it felt like the whole of my inner being was being torn to shreds . I have also been at the bedside of several congregants as they have come to the end of their lives and witnessed the incredible power of shared love as I have been in the presence of their loved ones. The love experienced in such moments is overwhelmingly powerful.

These memories are etched in my soul. I cannot truly visualise them, they are blurred a bit like looking through frosted over glass. They are like the spiritual experiences I have had, when everything that surrounds the object of my focus appears frosted over.and what is at the centre becomes illuminated. That said while I cannot visualise the memory it feels so alive in my inner being, I can embody the memory. It is somehow more real than reality itself. It is a deeper and thicker kind of real.

The other day another memory appeared on my screen. It was of my grandad’s 90th birthday party, just over a year before he died. As I looked at the picture posted by “Our Troy” I remembered well the conversation we had that day. How he told me how grateful he was to have lived the life he had. I re-felt the feeling of awe as he recounted a tale from the war. He was in the Royal Navy and the ship on which he served was under bombardment. The ship was hit by a shell that went right through to engineering. Somehow it never went off and as a result he and his crew mates were spared. His friend Percy, who went to sea with him, was not so fortunate he never came back. He later said that he has been a very fortunate man throughout his life. Like everyone he has known his share of suffering, but he knows how fortunate he has been to have had the chance to live the life he has had.

I have shed many private tears as I have re-felt that conversation. I shed several more as I wrote these words.

A few weeks ago I attended the funeral of my grandad’s long time partner, “Auntie Hilda”. They were together from 1973 until my grandad’s death. She is our Troy and Samantha’s mum. They are both heartbroken since she died.

After the funeral I was sat talking with my auntie Lynne and cousins and she was recounting tales of my birth and early childhood to my fiance Sue, I could sense powerfully her deep love for me, as I always do around family, particularly those who have known me for longer than I have known myself. She is one of those people that witnessed my earliest moments that I have no memory of. As my grandad had of her and as we and so many others shared over those last years of his life. These are deep connections.

Memory is a mystery to me. The way I remember my own life and people I share my life with has changed many times. The changes seem to coincide with the way I have experienced and understood my own humanity, another mystery. The truth is that my life is made up of those lives that went before me, my life is built on their lives and those that follow me, their life will be built on mine and my contemporaries. The ancestors who walked before me and those that follow me are actually a part of me. I find that incredibly humbling.

It fascinates me how these memories take shape and form and often reshape as time goes by; it amazes me how these memories seemingly re-incarnate as the days pass. In many ways it is memory that brings the moments I am experiencing to life, as it did during meditation on Tuesday morning.

Sadly we cannot store the experience of memories. Memories fade as our minds lose their power. I noticed this the other day as I realised I had left the chapel lights on overnight. Something that Thelma pointed out to me as I returned from the gym and chatted with her as she was hoeing in the garden.

I have always been terrible with names, faces I remember, as I do details of peoples lives, but names they seem to fall through the sieve that is that aspect of my memory.

I am told that this is only going to get worse, I have already seen the signs of what is yet to come. Billy Collins captured this perfectly in this extract from his poem “Forgetfulness”



The name of the author is the first to go
Followed obediently by the title, the plot,
The heartbreaking conclusion, the entire novel
Which suddenly becomes one you have never read,
Never even heard of,
As if, one by one, the memories you used to harbor
Decided to retire to the southern hemisphere of the brain,
To a little fishing village where there are no phones.
Long ago you kissed the names of the nine Muses goodbye
And watched the quadratic equation pack its bag,
And even now as you memorize the order of the planets,
Something else is slipping away, a state flower perhaps,
The address of an uncle, the capital of Paraguay.
Whatever it is you are struggling to remember
It is not poised on the tip of your tongue,
Not even lurking in some obscure corner of your spleen.
It has floated away down a dark mythological river
Whose name begins with an L as far as you can recall,
Well on your own way to oblivion where you will join those
Who have even forgotten how to swim and how to ride a bicycle.
No wonder you rise in the middle of the night
To look up the date of a famous battle in a book on war.
No wonder the moon in the window seems to have drifted
Out of a love poem that you used to know by heart.


I cannot remember how many things I have forgotten this week. We all forget things and even more as we get older. And then there is Dementia and its cruellest form Alzheimer’s A disease which attacks the cortex of the brain forming bundles of tangled plaque that inhibit conversation between the neurons; as it takes away a persons identity and history as aspects of their humanity drift away. The longer we live the more likely we are to become one of its victims.

Now while the Alzheimer’s sufferer forgets, those who loved them never let them go. Those who shared memories with them hold their love, those feelings are felt in that deeper place that cannot be destroyed by time. Love is eternal, it is immortal.

For as Isaiah (49 vv 15-16) said:

15 Can a woman forget her nursing child,
or show no compassion for the child of her womb?
Even these may forget,
yet I will not forget you.
16 See, I have inscribed you on the palms of my hands;
your walls are continually before me.

These words awoke somewhere in me the other day as I was looking at the palm of my hand; as I looked at my life line and my heart line and remembered the love I have known and the love I have shared, with those people who have made up my life. Such feelings are surely Divine.

This is beautifully illustrated by Thich Nhat Hahn, who wrote in “Present moment, wonderful moment”

“If you look deeply into the palm of your hand, you will see your parents and all generations of your ancestors. All of them are alive in this moment. Each is present in your body. You are the continuation of each of these people.”

All that has been before is a part of who we are.

Life awes me every single day, it humbles me also. The more I learn the less things make any sense. Every day I have a growing sense of how truly ignorant I am. Nothing makes sense to me. I have no idea why I feel what I feel or why my mind remembers and forgets things. Clever people try to explain these things to me, but they seem to get it even less I. The sum of the parts they describe do not even begin to scratch the surface of the whole.

That said I am so grateful to be a part of this incredible mystery that is life itself,; that I get to share it with the people I do; that I get to experience the sensations of these memories coming to life in my body and spirit, enhancing my experience of life today.

I am grateful to have experienced this the most amazing trip that anyone could wish to be on. Thank you for being a part of it.

Saturday, 4 January 2014

A Rose in the Winter Time

“And I’ll bring you hope when hope is hard to find and I’ll bring a song of love and rose in the winter time.” Carolyn McDade 

The last few weeks have been particularly difficult within my wider family. Both my grand dad and my step brother Allen are very close to the end of lives. They have over the Christmas holidays been moved into hospices in different parts of the country.

I was feeling particularly low between Christmas and New Year, I hit an emotional rock bottom. I rang my sister Mandy whose birthday it was in the 27th of December. As we talked things began to change within me. During the conversation she repeatedly said to me that she keeps on looking for the love and it is this that carries her through the darker days. A couple of days later she sent me an email that although filled with sadness and suffering, was beautifully transformative; she wrote some of the most beautifully faith filled words I have read in some time.

Mandy had gone to visit Allen, he had been taken into the hospital, for the final time. On arriving she looked around the grounds, there was little or no natural life to be found. All the trees were bare and the plant life had died off. This deepened her sadness as she walked inside. Sometime later, as she was leaving, she noticed a lifeless shrubbery which she gazed at for a few moments. Suddenly her eyes caught sight of something else, one of the most beautiful winter sights anyone could wish to see. A single rose, "a rose in the winter time". In that moment she realised that she had found the love that she had been searching for; this love has continued to grow as she passed it on to me and it brought me hope when I was struggling to find it; the email was a pure song of love as she told me of that rose in the winter time. Strangely I’ve heard the birds outside my window singing more clearly these last few days. I've found that “peace that passeth all understanding”, once again, as I have fully accepted life and stopped doing battle with reality.

There is a somewhat peculiarly worded Celtic wedding vow that I have heard uttered by several people recently. It reads as follows..

“I honour your gods
I drink at your well
I bring an undefended heart to our meeting place
I have no cherished outcome
I will not negotiate by withholding
I am not subject to disappointment”

It is not what you would describe as romantic and yet there is something deeply moving about it. It touches something way down in the depths of my being. It is the line “I bring an undefended heart to our meeting place” that has been resonating with me for quite some time.

I am learning that one of the keys of spiritual living is an undefended, an open, heart. This can be extremely painful and difficult at times, but I have learnt how vital it is for me. When I close down or put on my suit of armour life soon loses its flavour. I suppose that this is why I’ve always struggled with the sentiment of Ephesians 6 vv 10-18, the passage commonly known as “God’s Armour”. I was recently at an Anglo Catholic church where I saw an image based around this passage. I remember thinking to myself “gosh that’s the last thing I would want.”

For me religion and spirituality are not about being at war or in conflict. It is hard for anyone to truly know what God's will for them might be but I am fairly certain the God of my limited understanding does not want me armour plaited. I know these kinds of images appeal to many and certainly to some of my own friends who are Christians. Not to me though and it does seem in conflict with the message I find in the Gospels.

Increasingly for me the spiritual life is about “Living with an unarmoured heart”, easier said than done I know. 

We all have defence mechanism, things we do to protect ourselves from being hurt. I am sure we are all familiar with the fight and flight mechanism. There is another reaction to perceived danger too that perhaps we are less familiar with, it is certainly one that is less talked about. I have come to call this the freeze mechanism. It is something I am very familiar with, for I have utilised it throughout my life. Basically when trouble strikes a frozen person appears to continue to function normally on the outside, but inside, emotionally at least, they shut down, they internally hibernate. When it happens to me my neck and shoulders become stiff, my throat dries up, the base of my skull seems to become warm and itchy, my skin tightens around my face, I tend to blow out a lot and it feels like someone has just dropped a great rock into the pit of my stomach. These are the moments when I build up my walls and try to keep life out.

How many of us spend lifetime’s building walls around our hearts that we think will protect us when in fact all they succeed in doing is block us off from the love present in life? It does not have to be like that. We can live with an undefended heart. Just imagine what that might be like.

To live with an open heart is to live intimately with all that is life. It is to experience life through our felt experience to not be ruled by what our minds project from our past, those disappointments and fears that have been built over a life time. To live with an unarmoured heart is about connecting with all that is there. Zen Buddhism talks about intimacy with 10,000 things, meaning intimacy with all things, all phenomena, that nothing is left out. This is precisely what it means to live with an unarmoured heart.

But how do we know if we are living this way? Well I have discovered that I am living openheartedly when I am not at war with life, when I am not arguing with reality and not avoiding intimacy, especially with my own thoughts and feelings. I have found myself arguing with reality at times these past few weeks, but thankfully this has not lasted, I have not remained in a frozen state for too long. Another sign is the capacity to see joy even when in deep pain and unhappiness.

To live joyfully is live by heart. I think too often we live by the head alone; this so often limits our human experiences. The head should not be master in my book. Why? Well because so often it does not tell us the whole truth, it can limit our experience. There is something deeper something more that occurs when we attempt to live by the heart and an unarmoured one at that.

A few weeks ago, during worship, I shared a version of the “Rudolph the Red Nosed Reindeer” story with the congregations I serve. After I’d finished I asked them to sing the song to me. Virtually every single one of them did so and they loved it; they enjoyed themselves as they let themselves go. They knew the words too. I am certain that this was not because they had spent hours studying them; no instead they learnt them by heart. They learnt them as they sang the words joyfully. Those words and many other songs and other aspects of our lives are stored somewhere deep within us, much deeper than our minds and even deeper than our hearts. I would say that they are embedded in our souls. This is why they spring from our hearts at certain times. How many times do we find ourselves doing something or going somewhere when suddenly something just bursts out from the core of our being? Some old lost memory, something we probably couldn’t remember if we searched our minds and yet there it comes bursting from our open hearts.

A couple of years ago I attended a session led by “singing therapists” who work with people with Alzheimer’s and Parkinson’s. They explained how singing old songs, especially from their childhood and young adulthood, brought many people who seemed almost lost back to life, if only for a few moments. I have since watched several television programs that have explained how this works. Now I do not understand the scientific explanation for this and it’s not my place to attempt to explain, I am after all a minister of religion. You can look that up yourselves. All I know is what I witness and that’s people who are seemingly lost coming back to life, if only for the briefest of times. What I see is heart memory not only surviving but at times thriving. To me it is another beautiful example of that rose in the winter time; another beautiful symbol of pure hope.

Now please do not get me wrong when I talk of living by heart I am not for one moment decrying the mind, far from it. It is vital that in matters of religion and all life that we develop the mind and maintain rational perspective. That said I also believe that we must also watch out for the fetters that can be created by our own minds. We need to be careful that we are not ruled wholly by the mind, that we do not make it a God.

We are now a few days into a New Year. I suppose my simple message as we step further into it is to try and live as open hearted as we possibly can; to not be ruled by the fears of what might be or the frustrations and let downs of the past; to not put on that suit of armour and go into battle with life. It will not protect us in any case; all it will do is block us off from what really matters in life. The God I have come to know does not want or need this from us. I believe that this infinite source of all love would prefer us live with an unarmoured heart and an open spirit. I believe that by doing so we will see the beautiful symbols of hope all around us and by doing so we may just bring some hope into the lives of other. For we all need to know that rose in the winter time.

“Cos I’ll bring you hope when hope is hard to find and I’ll sing a song of love and a rose in the winter time.”


“The Rose

Some say love it is a river 

That drowns the tender reed. 

Some say love it is a razor 
That leaves your soul to bleed.

Some say love it is a hunger 

An endless, aching need 

I say love it is a flower, 
And you it's only seed.

It's the heart afraid of breaking 

That never learns to dance 

It's the dream afraid of waking 
That never takes the chance

It's the one who won't be taken, 

Who cannot seem to give 

And the soul afraid of dying 
That never learns to live.

When the night has been too lonely 

And the road has been too long. 

And you think that love is only 
For the lucky and the strong.

Just remember in the winter 

Far beneath the bitter snow 

Lies the seed that with the sun's love, 
In the spring, becomes the rose.


by Amanda McBroom